rareIQ: Building Rare Communities
What does it take to build a sustainable patient community? This white paper outlines rareLife’s three-step, rare-focused approach.
What does it take to build a sustainable patient community? This white paper outlines rareLife’s three-step, rare-focused approach.
The “Morquio Syndrome: A Guide to Understanding MPS IV” booklet was designed and executed to support the information needs of people diagnosed with MPS IV and those who support their care.
The National MPS Society Physician MasterClass was designed and executed to inspire up-and-coming medical geneticists.