rareIQ: Building Rare Communities
What does it take to build a sustainable patient community? This white paper outlines rareLife’s three-step, rare-focused approach.
Booklet: A Guide to MPS IV
The “Morquio Syndrome: A Guide to Understanding MPS IV” booklet was designed and executed to support the information needs of people diagnosed with MPS IV and those who support their care.
National MPS Society Physician MasterClass
The National MPS Society Physician MasterClass was designed and executed to inspire up-and-coming medical geneticists.