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Scientific Communications

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rareIQ: Building Rare Communities

Scientific CommunicationsBy rareLife solutionsOctober 19, 2020

What does it take to build a sustainable patient community? This white paper outlines rareLife’s three-step, rare-focused approach.

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Booklet: A Guide to MPS IV

Scientific CommunicationsBy rareLife solutionsJuly 24, 2020

The “Morquio Syndrome: A Guide to Understanding MPS IV” booklet was designed and executed to support the information needs of people diagnosed with MPS IV and those who support their care.

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National MPS Society Physician MasterClass

Scientific CommunicationsBy rareLife solutionsOctober 30, 2017

The National MPS Society Physician MasterClass was designed and executed to inspire up-and-coming medical geneticists.

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