BUILDING MPS IV UNDERSTANDING FOR PATIENTS AND CAREGIVERS
The Morquio Syndrome: A Guide to Understanding MPS IV booklet was designed and executed to support the information needs of people diagnosed with MPS IV and those who support their care.
The challenge: Like other rare diseases, there is little literature available on MPS IV as compared to more common medical conditions, and what is available is often difficult for laypeople to understand.
The solution: This 41-page booklet provides a wide-ranging overview of MPS IV, from causes, diagnosis, and symptoms, to management, implications of inheritance, resources for community support, and beyond. The booklet was created for the National MPS Society, which exists to find cures for MPS and related diseases.