The voice of SCD

oneSCDvoice was created with the vision of empowering those impacted by sickle cell disease by facilitating access to information and support from the sickle cell disease community.

The platform was developed in collaboration with the community, including working groups of more than 20 sickle cell disease patients, advocates, and medical professionals,, as well as members from the Sickle Cell Disease Association of America, Pfizer Rare Disease, and rareLife solutions. The collaboration members guided the customization of the platform by identifying knowledge gaps, sharing information preferences, and continually engaging their networks for additional insights.