Building an XLH community
Our oneXLHvoice community, which debuted in November 2020, supports the needs of Portuguese- and Spanish-speaking X-linked hypophosphatemia patients, advocates, and caregivers in Brazil and Mexico.
In addition to a community forum that uses text analysis software to recommend relevant articles related to topics of discussion, as well as a deep set of curated resources from around the web, oneXLHvoice also includes a custom-built Diagnosis Educator section to support the unique needs of patients and caregivers in the XLH community.
Note: This onevoice community is currently not supported by a sponsor; organizations interested in learning more about sponsorship opportunities should contact Dan Donovan.