Building an XLH community

Our newest community, oneXLHvoice, debuted in November 2020. In partnership with Ultragenyx Pharmaceuticals, this community supports the needs of Portuguese-speaking X-linked hypophosphatemia patients, advocates, and caregivers in Brazil.

In addition to a community forum that uses text analysis software to recommend relevant articles related to topics of discussion, as well as a deep set of curated resources from around the web, oneXLHvoice also includes a custom-built Diagnosis Educator section to support the unique needs of patients and caregivers in the XLH community. The XLH site is also the first to feature our new onevoice visual design.