Building an XLH community

Our newest community, oneXLHvoice is set to debut in Q3 2020. In partnership with Ultragenyx Pharmaceuticals, this community will support the needs of Portuguese-speaking X-linked hypophosphatemia patients, advocates, and caregivers in Brazil.

In addition to an online community forum that uses text analysis software to recommend relevant articles related to topics of discussion, as well as a deep set of curated resources from around the web, oneXLHvoice will also feature a custom-built Diagnosis Educator section to support the unique needs of patients and caregivers in the XLH community.