Finding and diagnosing patients early in the journey benefits the entire rare disease community. While artificial intelligence and big data are growing as ways to potentially find patients sooner, sometimes—especially in rare—a more personal approach is required.
Because we are immersed in rare diseases, both professionally and personally, our team understands the intricacies of rare. Patient finding and community building are cornerstones of rare disease problem solving as they directly benefit individuals living with a rare disease and the rare community at large, while enabling improvements in patients’ experience and care.
Our proprietary iterative process includes 3 steps that repeat over time as we learn and find more patients. To complement patient-finding efforts, rareLife also deploys educational initiatives so that healthcare providers (HCPs) are better equipped to suspect and diagnose people with a rare disease—here we focus on finding people directly.